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    • Home
    • About Us
    • Support
    • Resources
    • Donate & Fundraising
    • The Team
    • Working in Partnerships
    • Media & Publications
    • TACKLE CTE
  • Home
  • About Us
  • Support
  • Resources
  • Donate & Fundraising
  • The Team
  • Working in Partnerships
  • Media & Publications
  • TACKLE CTE

Welcome to ConneCTErs Australia

WELCOME TO OUR NEW BRAND

Say hello to our newly branded ConneCTErs Australia

 Our refreshed identity reflects our commitment to delivering informed, compassionate, and specialised support across Australia! 


 CTE affects individuals from diverse backgrounds and circumstances, reminding us that this condition reaches far beyond any single group. 


Every person impacted by CTE deserves access to respectful, informed, and compassionate support. They are entitled to quality healthcare, meaningful recognition of their experiences, and the dignity that should underpin all aspects of care. 


At ConneCTErs Australia, we acknowledge the profound impact CTE has on individuals and families, and we are committed to advocating for the understanding, resources, and support each person rightfully deserves. 


Here, you'll discover what we are all about. 

Honor the past, safeguard the future.

Our Truths

We are focused on protecting growing brains. Every child deserves the chance to grow, learn, and thrive without preventable risks. 


We are driven to create a national access point for support, advice, advocacy and education given the challenges and isolation caused by CTE.


We are promoting and campaigning for people to access timely, affordable and helpful investigations and treatment for probable CTE, nationally. 


We do not want anyone to suffer in silence. 


We are dedicated to driving down CTE-related suicides by championing early support, informed pathways to care, community understanding, and collective responsibility for change. This will be achieved by working closely with the people, our community and national services, and both state and federal Government agencies.


We do not want to eliminate professional or contact sport. We are pro-sport for overall health and wellness!


We are committed to support strong and effective concussion management, prioritise brain health and safety in all aspects of daily life, and ensure that head impacts and concussions receive the timely and appropriate attention they deserve.

ConneCTErs Australia is empowering and supporting individuals and the community to better understand prevention, access the required medical and emotional support, receive education, work in partnerships, and participate and contribute to the research of CTE.  

What is Chronic Traumatic Encephalopathy (CTE)?

CTE is a type of dementia (degenerative brain disease) caused by many repeated injuries to a person’s brain. 


CTE has been linked to the exposure of repeated head impacts, injuries and concussions from high head impact activities, sport and workplaces, along with violence and other activities impacting brain and head safety. It is thought that brain vibration, inflammation, damage and a person’s genetic profile may play a role in the development of CTE dementia. Those at high risk of CTE are people who have experienced repeated concussive and sub-concussive head impacts over a period of time. 


Reducing head impacts and brain injuries along with concussion management are essential steps to preventing CTE.    


CTE cannot be diagnosed with clinical certainty until after death, as no definitive tests exist for living individuals. Instead, a medical specialist relies on a comprehensive clinical assessment to diagnose probable or suspected CTE. This assessment factors in the patient's personal background, history of repeated head injuries, and observed symptoms of cognitive impairment. Investigations and evaluations may typically involve:

  • A thorough review of medical history and symptoms
  • A physical examination
  • Imaging studies of the brain (e.g. CT, MRI)
  • Testing of blood and urine
  • Psychiatric and mental state assessments
  • Functional testing of memory and cognition (likely to include neuropsychological testing, OT assessments, and other relevant assessments)

When other conditions have been eliminated as the cause and the symptoms align with the pattern of the disease, a specialist may formally diagnose the condition as probable or suspected CTE (and/or other relevant diagnosis)

What else do we know about CTE?

  • You’re unlikely to develop CTE from only one or a few knocks to the head.
  • Repeated knocks to your head damage your brain over time. 
  • CTE is often seen in people who have played contact sports or sports with risk of head knocks, experienced assaults, have been in active war zones or exposed   to explosions, and have experienced multiple falls with head knocks. 
  • If a person is suspected to have developed CTE, avoiding alcohol, smoking and illicit substances is important to minimise the worsening of symptoms and progression of the disease. 
  • There are probable risks associated with people sustaining repeated head knocks and injuries, and drinking alcohol or using illicit substances.

Did you know not all concussions have signs and symptoms?

Concussions and sub-concussions impact the brain and can cause injury

Our medical and research experts for CTE advise that both concussion and sub-concussions contribute to CTE, empahising the importance of being aware that even without clinical symptoms, damage to the brain can occur. 


The Brain Foundation helpfully describes a concussion and sub-concussion. 

  • A concussion is a type of mild traumatic brain injury that can occur when the head or body experiences a sudden impact or jolt. 
  • The impact causes brain strain with resultant inflammation, damage to neurons, and a change in your metabolic state.
  • Concussion was once believed to be a minor injury that does not cause ongoing complications. However, new research has found that 20-50% of patients report persistent side effects beyond one month.
  • A sub-concussion refers to head injuries that do not result in the clinical symptoms of a concussion but can carry less, equal or greater force than a concussion.


ConneCTErs Australia's take home message is aligned with the experts saying, if in doubt, sit it out. This is to give the brain time to recover even when there are no signs or symptoms. 

SYMPTOMS OF CTE

Thinking

Memory loss

Cognitive difficulties and changes 

Learning difficulties 

Poor concentration 

Confusion

Loss of sense of direction 

Brain fog 

Headache or head pressure

Increased disorientation

Struggling to remember names of people and things

Unexplained stopping mid-conversation

Mood

Anxiety and panic attacks

Unexplained worrying and sadness

Depression 

Suicidal thinking 

Impulsivity 

Loss of empathy

Rollercoaster emotions and difficulties regulating mood

Reduction in desire to socialise

Behaviour

Rage and unexplained anger

Agitation

Loss of motivation

Reduced social activity 

Wandering 

Slowness or Parkinson's-like changes

Noticeable changes to personality and out of character behaviour

Difficulties coping

Repeating stories and being stuck on topics that cause increased emotions

Function

Noticeable decreases in some body functions (ie. walking steady, swallowing, coordination)

Experiencing difficulties with talking and finding words

Difficulties with cooking 

Difficulties with driving 

Changes in ability doing jobs or tasks that were previously easy or routine


CTE COMMUNITY

    OUR RECOMMENDATION

    Michael and Frankie Lipman provide an honest and powerful story. Do yourself a favour and read it!

    ConneCTErs Australia want people living with symptoms of CTE and their loved ones to know there are courageous people in our great country who have and still continue to bring awareness and better understanding of CTE though their own stories and on different platforms.

    Contact Us

    Please reach out and we will endeavor to assist you

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